Featured Events

Come dressed in your most stylish sweater or finest flannel and enjoy an evening of drinking, dancing, and fun to support The Children’s Inn at NIH. This winter-themed party will feature a live DJ, unlimited winter warmer cocktails mixed by the area’s top bars, an additional open bar, cozy comfort food, a silent auction, games and activities, and many ways to give back to children and families who need it more than most.

Rare Disease Week on Capitol Hill brings rare disease community members from across the country together to be educated on federal legislative issues, meet other advocates, and share their unique stories with legislators.

Over the course of a week, advocates will attend RDLA’s Legislative Conference to learn about the legislative process, legislation currently under consideration by Congress, and effective advocacy techniques to build a relationship with Members of Congress and staff, meet with Members of Congress and staff, and attend the Rare Disease Congressional Caucus briefing.

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